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Buck222
Joined: 23 May 2008
Posts: 350
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 New "creative" reason for shallow breathing/aeropa
I'm waking up now and finding myself breathing shallowly (on either the old or new Quattro) because normal breathing is sending the mask into wild eye leaking including some wet eye leaking (from my drool in mask?) plus I woke up with that feeling of swallowed air in my stomach. Pressure was up near 20, maybe the shallow breathing caused the pressure to rise so high as the machine thought "apnea" and responded by rasising my pressure..........or perhaps the high pressure came first and caused the leaks which caused me to hold back my breathing.
I have gained some weight, maybe this is the reason for the pressure going higher while I sleep.
Also, I received my records from the doctor. Some needed papers in there, a lot of things missing as well. I will post about it if anyone is interested, otherwise will communicate with friends here through email.
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| Fri Oct 24, 2008 9:28 am |
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Vicki
Moderator
Joined: 31 May 2005
Posts: 3600
Location: Southern California
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Buck,
Your APAP pressure should be set around 2 cmH2O above and below your prescribed pressure. The spikes up to 20 cmH2O (unless your pressure is 18) are erroneous and are causing arousals and possibly central apneas.
Your mask either is not adjusted properly or you need a different model of mask. I can pretty much guaranty that a Quattro is going to leak at that pressure. Maybe when you get the pressure where it belongs you won't have the leaks (as you noted).
Vicki
_________________ That which does not kill you makes you stronger-Friedrich Nietzsche
Friedrich must of had apnea.
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| Fri Oct 24, 2008 1:16 pm |
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Buck222
Joined: 23 May 2008
Posts: 350
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Vicki,
My pressure (Respironics BiPap w Auto) is set to go from 11 to 20.
Please explain how to set my pressure to be 2cmH20 above and below my prescribed pressure and I'll set it correctly.
My Quattro shouldn't leak at that pressure if I tighten it enough but it's now leaking even at 13 I 11 E.
Thanks,
Buck
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| Fri Oct 24, 2008 7:30 pm |
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Mrs Rip Van Winkle
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Joined: 08 Jun 2006
Posts: 2433
Location: Nature Coast, Florida
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Mrs Rip Van Winkle
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Also, Your scripted pressure from tje Dr is suppose to be 19 IPAP and 17 EPAP....not Auto...if I remember your earlier posts correctly.
_________________
CLICK HERE FOR MORE INFO~ http://tinyurl.com/69q52a
BiPAP Auto M 13/8 Mirage Nasal Swift. 20 years+ undx'd. RLS/PLMD, Hypersomnia & more.
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| Fri Oct 24, 2008 8:09 pm |
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Buck222
Joined: 23 May 2008
Posts: 350
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I was supposed to be 20/4 auto as the doctor didn't feel that I could handle 19/17. My titration report said that all apneas stop for me at 19...............Now I just read a copy of another part of my titration report which said that apneas stopped at 16 during my titration but I also saw where the report said that I was titrated by CPAP and I realize that BPAP follows a different system regarding pressure.
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| Fri Oct 24, 2008 9:08 pm |
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Mrs Rip Van Winkle
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Joined: 08 Jun 2006
Posts: 2433
Location: Nature Coast, Florida
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Mrs Rip Van Winkle
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The tech during the titration study titrates you to the 90 percentile (or maybe it is 95 percentile)..this leaves room for the Dr to tweak it some.
Oh, I thought you had said that you were having trouble with the 19I /17E and that the DME came back out after you letting them know and reset your machine to the 4cm to 20 cm.
When I switched from CPAP to BiLevel my Dr did not adjust my pressure for the bilevel.
_________________
CLICK HERE FOR MORE INFO~ http://tinyurl.com/69q52a
BiPAP Auto M 13/8 Mirage Nasal Swift. 20 years+ undx'd. RLS/PLMD, Hypersomnia & more.
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| Fri Oct 24, 2008 9:59 pm |
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CPAPerRon
Joined: 29 Jul 2008
Posts: 112
Location: Charlotte, NC
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In Auto mode, you set the EPAP pressure and the Pressure Support (PS). Those two numbers get added together to set the IPAP pressure. The machine also has a "Max IPAP" pressure setting, which is an upper limit but not necessarily the pressure the machine will use.
_________________ ----
ResMed VPAP Auto 25 w/heated humidifier
ResMed Mirage Liberty Full Face Mask (nasal pillows and mouth enclosure)
BiPAP pressures: 14/10
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| Fri Oct 24, 2008 10:05 pm |
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Buck222
Joined: 23 May 2008
Posts: 350
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Mrs RVW,
That is true about the DME tech.
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| Fri Oct 24, 2008 11:13 pm |
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Buck222
Joined: 23 May 2008
Posts: 350
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Ron,
How do I set the EPAP and the PS together? I'm using a Respironics BPAP w Auto, don't know how to set PS.
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| Fri Oct 24, 2008 11:15 pm |
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Buck222
Joined: 23 May 2008
Posts: 350
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 What are best full face masks for high pressure?
Vicki (and all).
What are considered the best full face masks for high pressure?
I just woke up with air blowing from somewhere directly into my left eye and I still feel it. I have to do SOMETHING!
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| Sat Oct 25, 2008 6:43 am |
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Mrs Rip Van Winkle
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Joined: 08 Jun 2006
Posts: 2433
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" don't know how to set PS."
I believe this is Max Pres Sup in the clinicians menu. But...you should really try to get back on what the Dr scripted.,,instead of tryong ti self treat.. You have not given it a fair chance and have had numerous issues with your method..which should tell you something.
_________________
CLICK HERE FOR MORE INFO~ http://tinyurl.com/69q52a
BiPAP Auto M 13/8 Mirage Nasal Swift. 20 years+ undx'd. RLS/PLMD, Hypersomnia & more.
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| Sat Oct 25, 2008 8:48 am |
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Buck222
Joined: 23 May 2008
Posts: 350
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The Dr?
He scripted two separate things plus wrote two different numbers stopped my apneas (in two different parts) of my titration study..................His staff gave me two different titration numbers (neither of which were the same as the doctor's script).
You trust my doctor. You never met him, you never experienced the nasty and unprofessional treatment I got while seeing him. I don't trust this doctor. I have no faith in what he says. He's a liar, he never gave me a apnea breakdown of my titration nor any more than a stinking compliance report from my smart card.............He claims these reports I ask him for don't exist............He also claims that machines don't exist which give daily detailed breakdowns of nightly events while sleeping. He told me that I don't have any apneas at all when I use the machine. HE IS A LIAR! who misread me and thought that I wouldn't use the BPAP. HE WAS WRONG! and it seems that his only concern was to "convince me" to use the BPAP so that HE WOULD GET PAID.
The doctor got nasty, insulting, dismissive, of course defensive whenever I would gently question him about any of these things he said which weren't making sense to me.
Right now, I can't even remember all the lies which he told me.
Please believe me.
You are a caring woman, a very helpful woman, a true on-line friend. If you are going to find reasons to defend a doctor who has treated me like a dog then you aren't helping me even though you would like to help me..............Believe me, I don't know if the doctor treats all or even some of his patients the way he treated me but no-one deserves to be given the kind of incompetent! treatment that I got from him.
I realize that you are trying to help me by showing me another POV about this doctor and I wish that you were right, that it were only my anxiety which was making me misunderstand what actually was going on regarding my treatment. Believe me, it would be much easier for me if I were having good, competent treatment and if I could be shown that I had no reason to feel uncomfortable about being mislead, lied to, that I was being given all my information, that I was being treated fairly by an honest physician...........But I can't keep adding up two plus two and keep getting five from it. Lots of things this doctor tells me don't make sense to me and wouldn't make sense to you or to anyone on this board.
I'm not going to get any help from this doctor. He's not about to "drop everything" and study my latest smart card results in order to reset my pressure. I know that already. He suggests another titration study but who do you think benefits from a new study? And I have no faith in being helped by a new study from him if I look at the unsatisfactory or double results from the old study, the missing information, the deceptions or lies, the bad treatment............I have no faith in anything from him, I wouldn't trust that guy to give me the correct time.
Last night I finally fell asleep without taking any sleeping pills. I kept waking up to urinate, got leaks from mask including the direct air in my eye, my 7 day average AHIs keep going up.
No apnea? Does the doctor think I'm stupid? Probably or maybe he doesn't care what I figure out because I can't do anything about it anyway. Honest people are usually at a loss when it comes to deceptive people because deceptive people know how to cover themselves and make the truth that honest people tell, come out to look wrong.
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| Sat Oct 25, 2008 11:03 am |
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CPAPerRon
Joined: 29 Jul 2008
Posts: 112
Location: Charlotte, NC
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Sounds like it's time for a new doctor!
there is nothing tying you to this doctor - switch!
There are a LOT of factors that come to play besides the number you hit as your 95th percentile during your titration study. A qualified medical doctor is the only person who can put them all together and treat your collapsing airway problem. We fellow internet buddies can't diagnose what we're not qualified for.
I would find another ENT doctor and bring them your past results and let them have a whack at it. You DO deserve to be treated with respect and have your concerns addressed in a caring and professional manner.
_________________ ----
ResMed VPAP Auto 25 w/heated humidifier
ResMed Mirage Liberty Full Face Mask (nasal pillows and mouth enclosure)
BiPAP pressures: 14/10
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| Sat Oct 25, 2008 1:33 pm |
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Buck222
Joined: 23 May 2008
Posts: 350
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Ron,
I agree and I will be seeing a new doctor although the new doctor isn't set up to read the smart card of my machine.
Thank you for replying.
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| Sat Oct 25, 2008 1:51 pm |
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Mrs Rip Van Winkle
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Posts: 2433
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Yep....as said in another post..then it is time to get a new Dr. If you were refering to me saying trust him...I do not beleive I said Trust him...I said try the titrated pressure that he scripted you for..and that you have not yet given that a fair chance.
" his only concern was to "convince me" to use the BPAP so that HE WOULD GET PAID. "
FYI..A dr does not get paid because you get a machine.
Thank You Buck...now I see the problem.
_________________
CLICK HERE FOR MORE INFO~ http://tinyurl.com/69q52a
BiPAP Auto M 13/8 Mirage Nasal Swift. 20 years+ undx'd. RLS/PLMD, Hypersomnia & more.
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| Sat Oct 25, 2008 9:17 pm |
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