To answer some of the questions.... my asthma is allergy related. I have alot of seasonal allergy issues but for the asthma the biggest trigger is mold, so it usually only kicks up in the fall and was controlled with a steroid inhaler. However in 2008 my city underwent MASSIVE flooding. A friend of mine involved w/the community health clinic sd they were told to expect an increase in respiritory complaints for 2-3 yrs post flood. Sure enough my asthma kicked in much earlier than usual, much worse than usual and took both a steroid inhaler and an albuterol inhaler. I'm hoping it will bit more mild this year. The chest pain was definitely related to the asthma and the c-pap really made it uncomfortable. (almost felt like pleuresy a few times). My sleep doc is a neurologist w/a sub specialty. There is only one other sleep lab in town and they don't take my insurance. So I have to use a doc that is attached to the sleep lab that is covered. He is supportive if he is having a good day and if he's having a bad day, acts like i just must not be trying. (my last visit he was supportive and that is when he sugg borrowing a data capable machine for a month). At any rate it always is an 8-12 week wait to see him. My insurance company does NOT cover mask replacement at all, so I don't really have the opportunity to try many on, and the only DME w/pymnts I could afford at the time is 20 miles away so I don't see them much. I have tried what feels like everything... drugs at night, aromatherapy (still won't do w/o that!), hose cover, velcro clips, humidifying, sinus irrigation, taping mouth and mask, etc, etc, etc. While awake, the pressure doesn't bother me much... I have laid awake for as long as 2 hours at full pressure and if I wake up sometimes i put my hand in front of the exhalation vent to make sure its still going cuz I don't really notice it. But SOMETHING keeps happening once I fall asleep!!!
A couple of nights ago, I had major panicky episode, ya know dreaming like i couldn't breathe and couldn't scream... kinda sleep paralysis thing...that hasn't happned in a while, but may have been the klonopin. I take 1 or 2 mg as needed at bedtime if I am using (or trying to use) mask. This was prescribed by family doc (i don't have RLS or Periodic Limb Movement Disorder, but he thought it would help me not pull off mask) but my sleep doc was 50/50 on it. Mostly because if you keep your mask on it can help alot but if it comes off... klonopin can cause increased apneas. (and I can tell when that happens.) Yikes sorry this is sooo long, but as you can tell I have ALOT of frustration built up. Damn near suicidal some days from the inability to ever get some REST!