Well - what a disaster our hospital visit was.  Toby just wouldn't tolerate the CPAP mask with the airflow.  I managed to get him to sleep with just the mask the first night and then when the doctors actually  had a look at the mask on his face they decided it was just too big.  AFter trialing a few other masks with great difficulty they found one which is small just over his nose - he wasn't as receptive to this mask and as soon as i turned on the air - forget it - he went hysterical and i couldn't keep him calm - as soon as he calmed for a minute i let his arms go and he just took off the mask .  This was the routine for 2 sleepless nights at the hospital when they decided to discharge us and told us we would have to try again in a few months but this time they would give me everything to do at home.  Well this isn't going to help or be any easier - so we will just have to see.

In the meantime they have given him Melatonin but after two weeks so far still no help.  He sometimes in the night just walks down to my room and still gets up around 4.30 am or just gets up at 4.30am anyway - needless to say my husband and i are walking zombies.

michelle

Hi Michelle,

I'm so sorry to hear that the cpap trial did not go well for Toby .  


Sending you lots of positive thoughts and encouragement .....and a cyber hug

Susanne with the mini hosehead Chris