I know nothing about any of this so please bear with me.
I've been battling excessive sleepiness since I was about 13. I'm now 26. I'm 5'4" and 135 lbs with no major health issues. I've had all the basic blood tests ( IE Thyroid, anemia) done and they've always been normal.
I sleep an excessive amount and absolutely never feel refreshed. I'm always groggy.

I had a sleep study done last fall. I will post the numbers below. The reason I am confused is because during my visit after the study, the doctor told me that my diagnosis was idiopathic hypersomnia. However, on the sleep study report, it says the diagnosis is sleep apnea.

I realize that these are 2 totally different problems. I've been treated with stimulants but they are of very limited help.

Can someone try to make some sense of these numbers? I am going for a second opinion soon but I just want very desperately to know what's going on with me and why I'm always so very very sleepy.


Patient had occasional loud snoring with 42 obstructive partial apneas for a respiratory distress index of 6 with no oxygen desaturation.[/i]
Study is normal other than during one stretch, she had abundance of obstructive partial apnea. May respond to CPAP.

For the MSLT:

1st nap 6.0 REM latency 5
2nd nap 12.0 REM latency 2
3rd nap did not sleep REM latency 2
4th nap 12.5 REM latency 5


AHI:6.19
Apnea:0
Hypopnea:6.19
NREM AHI: 7.69

Arousal Assoc
Apnea 0
Hypopneas 42 arousals 6.2 index
Leg Movements 17 Arousals 2.5 index
Spontaneous 62 Arousals 9.1 index
total 120 Arousals 17.7 index

Desaturation threshold setting: 4%
Minimum Desaturation setting 10 seconds
SaO2 nadir: 94%
The longest event was a 23 second obstructive Hypopnea with a minimum SaO2 of 96%
The lowest SaO2 was 95% with a 19 second obstructive hypopnea

baker843 wrote:

I know nothing about any of this so please bear with me.
I've been battling excessive sleepiness since I was about 13. I'm now 26. I'm 5'4" and 135 lbs with no major health issues. I've had all the basic blood tests ( IE Thyroid, anemia) done and they've always been normal.
I sleep an excessive amount and absolutely never feel refreshed. I'm always groggy.

I had a sleep study done last fall. I will post the numbers below. The reason I am confused is because during my visit after the study, the doctor told me that my diagnosis was idiopathic hypersomnia. However, on the sleep study report, it says the diagnosis is sleep apnea.

I realize that these are 2 totally different problems. I've been treated with stimulants but they are of very limited help.

Can someone try to make some sense of these numbers? I am going for a second opinion soon but I just want very desperately to know what's going on with me and why I'm always so very very sleepy.


Patient had occasional loud snoring with 42 obstructive partial apneas for a respiratory distress index of 6 with no oxygen desaturation.[/i]
Study is normal other than during one stretch, she had abundance of obstructive partial apnea. May respond to CPAP.

For the MSLT:

1st nap 6.0 REM latency 5
2nd nap 12.0 REM latency 2
3rd nap did not sleep REM latency 2
4th nap 12.5 REM latency 5


AHI:6.19
Apnea:0
Hypopnea:6.19
NREM AHI: 7.69

Arousal Assoc
Apnea 0
Hypopneas 42 arousals 6.2 index
Leg Movements 17 Arousals 2.5 index
Spontaneous 62 Arousals 9.1 index
total 120 Arousals 17.7 index

Desaturation threshold setting: 4%
Minimum Desaturation setting 10 seconds
SaO2 nadir: 94%
The longest event was a 23 second obstructive Hypopnea with a minimum SaO2 of 96%
The lowest SaO2 was 95% with a 19 second obstructive hypopnea

There is a lot in here to question, in my opinion. First off, the tech states that the study is normal other than partial apneas during a stretch. What in the heck? Did you get any clarification on that? If I had to guess, I would say that you ended up having your head in an odd position, which was leading to respiratory events, but only at that time in that position. This is purely a guess though.

Maybe the doctor discredited those events. If the loud snoring coincided with that stretch of events, then it may have been the position of your head at that moment.

You MAY have UARS, however this is all a guess. Without seeing the data that the tech scored, I have no idea. You did have a lot of spontaneous arousals though, which makes me wonder what was going on. Were you in pain? Do you sleep uneasy away from home (in a foreign bed), was it especially hot/cold in the room?

Heck overall you woke up ~ 17 times an hour. It would be hard to get rested.

Were you able to get into 20% Slow Wave Sleep? How about 20% REM sleep?

Did they give you a graph that indicates your arousals and the time that you had them?

baker843 wrote:

I know nothing about any of this so please bear with me.
I've been battling excessive sleepiness since I was about 13. I'm now 26. I'm 5'4" and 135 lbs with no major health issues. I've had all the basic blood tests ( IE Thyroid, anemia) done and they've always been normal.
I sleep an excessive amount and absolutely never feel refreshed. I'm always groggy.

For the MSLT:

1st nap 6.0 REM latency 5
2nd nap 12.0 REM latency 2
3rd nap did not sleep REM latency 2
4th nap 12.5 REM latency 5


AHI:6.19
Apnea:0
Hypopnea:6.19
NREM AHI: 7.69

Well, I know nothing as well............except that your description of yourself sounds exactly like my 24 yr old son.  He will be having a MLST soon....I'm wondering why those numbers don't indicate narcolepsy?    it looks like a pretty fast entrance into REM to me.  RAM_sleep?

to me it looks like you have mild obstructive apnea and narcolepsy...........but again, I have VERY LITTLE experience with this stuff, so really I am just asking this as a question....speaking on your behalf.

embryopathy wrote:

baker843 wrote:

I know nothing about any of this so please bear with me.
I've been battling excessive sleepiness since I was about 13. I'm now 26. I'm 5'4" and 135 lbs with no major health issues. I've had all the basic blood tests ( IE Thyroid, anemia) done and they've always been normal.
I sleep an excessive amount and absolutely never feel refreshed. I'm always groggy.

For the MSLT:

1st nap 6.0 REM latency 5
2nd nap 12.0 REM latency 2
3rd nap did not sleep REM latency 2
4th nap 12.5 REM latency 5


AHI:6.19
Apnea:0
Hypopnea:6.19
NREM AHI: 7.69

Well, I know nothing as well............except that your description of yourself sounds exactly like my 24 yr old son.  He will be having a MLST soon....I'm wondering why those numbers don't indicate narcolepsy?    it looks like a pretty fast entrance into REM to me.  RAM_sleep?

to me it looks like you have mild obstructive apnea and narcolepsy...........but again, I have VERY LITTLE experience with this stuff, so really I am just asking this as a question....speaking on your behalf.

I'm guessing narcolepsy variant with the OSA. I think that you nailed this one well. Its just a guess though.

I say that because in the study, the tech listed:

Study is normal other than during one stretch, she had abundance of obstructive partial apnea

I am not familiar with this notation, so its all a guess really. If the hypopneas were occurring in REM, then it may be OSA. If the patient switched positions and the apneas disappeared, then it might be OSA. If it was a matter of having his head $!@# at a funny angle, then it may be nothing worth speaking about. The tech was vague, which leaves us all guessing. We would need more info to try and figure it out.

One has to wonder about all of those spontaneous arousals too. It could be UARS as well.

baker843 wrote:

For the MSLT:

1st nap 6.0 REM latency 5
2nd nap 12.0 REM latency 2
3rd nap did not sleep REM latency 2
4th nap 12.5 REM latency 5

These values are unclear.  If you did not sleep in Nap #3, then you should not have had a REM Latency.

Ed

The very same thing that stood out like a sore thumb to me too, Ed. And the very fact that Baker was even able to fall asleep during 3 of the 4 naps begs a question too. The spontaneous arousals were the other thing that "bothered" me in this report.

Yeah, I'm one who would HAVE to request a copy of the full scored data (w/condensed graphs 'cause reading graphs isn't my forte) 'cause the dictated report wasn't any too impressive. The various PSG software are much more consistent in how the data is presented.


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